Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD
Northwell Health
1,500 participants
Sep 24, 2025
INTERVENTIONAL
Conditions
Summary
The purpose of this research study is to compare the Always Uniquely Me (AUM) mobile application to regular medical care. The investigators want to know if AUM is helpful at decreasing use of restraints and improving experience in the emergency department (ED) for people with intellectual and developmental disabilities (PWIDD). The investigators will also be looking at how certain characteristics of the PWIDD participants may affect those outcomes.
Eligibility
Inclusion Criteria5
- have visited a Northwell Health Emergency Department in the last 12 months
- have a confirmed intellectual and/or developmental disability
- must be 18 years of age or older at enrollment
- have a smart phone or tablet that connects to the internet
- have a preferred language of English
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Interventions
The app will allow the user to organize their healthcare information and personal needs which can help improve communication with doctors, clinicians and first responders.
Locations(1)
View Full Details on ClinicalTrials.gov
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NCT06986863