RecruitingNCT07001280

A Study Investigating the Effectiveness and Safety of Garadacimab for Treating Patients With Hereditary Angioedema (HAE)

Garadacimab Real-world Treatment Outcomes of Effectiveness, Safety, and Quality-of-Life in Patients With HAE (GREAT Study)


Sponsor

CSL Behring

Enrollment

200 participants

Start Date

Jul 21, 2025

Study Type

OBSERVATIONAL

Conditions

Summary

This is a multinational, multicenter, prospective, observational cohort study of patients with HAE in the real-world setting. The study will include patients newly initiating garadacimab in routine clinical practice. Each participant will be followed for 48 months after index date (date of the first administration of garadacimab). Patient data will be collected from the HAE eDiary, patient medical records (MRs) and/or during a routine clinical visit and will be entered into the electronic case report form (eCRF) via an electronic data capture (EDC) system. Data pertaining to HAE attacks, prior HAE treatments, retrospective focused safety data collection, and healthcare resource utilization (HCRU) over a look-back period of 12 months prior to the enrollment will be extracted from the MR, and patients will also record retrospective HAE attack related data over a look-back period of 3 months prior to enrollment in the HAE eDiary. The primary aim of this study is to investigate the real-world effectiveness of garadacimab as measured by HAE attack rate before and after garadacimab initiation in patients with HAE over 24 months of follow-up. The study will aim to complement the data available from the clinical development program on the efficacy, safety, and health-related quality-of-life (HRQoL) in patients with HAE taking garadacimab.


Eligibility

Min Age: 12 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying No intervention for people with hereditary angioedemas. The study is currently recruiting participants at 22 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERNo intervention

No intervention will be administered as part of this study.


Locations(22)

Medical Research of Arizona

Phoenix, Arizona, United States

Sirven and Associates

Miami, Florida, United States

Asthma and Allergy Wellness Center

Saint Charles, Illinois, United States

Family Allergy and Asthma

Louisville, Kentucky, United States

John Hopkins University

Baltimore, Maryland, United States

Washington University

St Louis, Missouri, United States

Riverside Medical Group, Belleville

Belleville, New Jersey, United States

Kepler Universitätsklinikum - Med Campus III.

Linz, Austria

Providence Health Care Society

Vancouver, British Columbia, Canada

Universitaetsklinikum Ulm

Ulm, Baden-Wurttemberg, Germany

HZRM Haemophilie-Zentrum Rhein Main

Frankfurt am Main, Hesse, Germany

Medizinische Hochschule Hannover

Hanover, Lower Saxony, Germany

Universitaetsklinikum Carl Gustav Carus TU Dresden

Leipzig, Saxony, Germany

Universitaetsklinikum Schleswig Holstein - Campus Luebeck

Hamburg, Schleswig-Holstein, Germany

Charité - Campus Charité Mitte

Berlin, Germany

Addenbrooke's Hospital

Cambridge, Cambridgeshire, United Kingdom

Barts Health NHS Trust

London, Greater London, United Kingdom

Manchester Royal Infirmary

Manchester, Greater Manchester, United Kingdom

Cardiff & Vale University HB

Cardiff, South Glamorgan, United Kingdom

Frimley Park Hospital

Frimley, Surrey, United Kingdom

Birmingham Heartlands Hospital

Birmingham, West Midlands, United Kingdom

Leeds Teaching Hospitals NHS Trust

Leeds, West Yorkshire, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT07001280