RecruitingPhase 3NCT07082543

A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of GM1 Gangliosidosis or GM2 Gangliosidosis

18-month Double-blind, Randomized, Placebo-controlled, Multicenter, Phase 3 Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease and in Late-infantile and Juvenile-onset Forms of GM1 Gangliosidosis or GM2 Gangliosidosis


Sponsor

Azafaros A.G.

Enrollment

75 participants

Start Date

Jun 30, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

An 18-month double-blind, randomized, placebo-controlled, multicenter, Phase 3 study to evaluate the safety and efficacy of oral nizubaglustat (AZ-3102) in late-infantile and juvenile forms of GM1 gangliosidosis or GM2 gangliosidosis


Eligibility

Min Age: 4 Years

Inclusion Criteria6

  • Confirmed GM1 gangliosidosis or Tay-Sachs, Sandhoff, or GM2AB variant
  • Male and female participants aged 4 years and older at the time of informed consent
  • Onset of neurological symptoms from 1 to 10 years
  • Disability level at Baseline: Ataxic disturbances with a total SARA score of ≥3 and ≤30 at Baseline
  • Females of childbearing potential who are sexually active willing to follow the contraceptive guidance
  • Male participants with a female partner of childbearing potential willing to follow the contraceptive guidance

Exclusion Criteria9

  • A history of medical conditions other than GM1 or GM2 gangliosidosis that, in the opinion of the Principal Investigator, would confound scientific rigor or the interpretation of results
  • Body weight of \<10 kg
  • The presence of another neurologic disease
  • The presence of moderate or severe hepatic impairment
  • The presence of moderate or severe renal impairment
  • Platelet count of \<100x10\^9/L
  • The dose of any anti-epileptic treatment(s) was not stable (required a change in dose within the previous 3 months) and/or a new anti-epileptic treatment (drug or procedure) was prescribed in the month before Baseline
  • Prior use of an investigational drug within the 3 months before Screening; or prior participation in a clinical study involving gene therapy or stem cell transplantation within 2 years prior to Screening
  • A positive serum pregnancy test (for women of childbearing potential)

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Interventions

DRUGAZ-3102

Nizubaglustat

DRUGPlacebo

Placebo


Locations(36)

UCSF Children's Hospital and Research Center at Oakland

Oakland, California, United States

University of Minnesota Medical School

Minneapolis, Minnesota, United States

Mayo Clinic Children's Center - PIN

Rochester, Minnesota, United States

Children's Medical Center Dallas

Dallas, Texas, United States

Lysosomal Rare Disorders Research and Treatment Center

Fairfax, Virginia, United States

Hospital Universitario Austral

Ciudad Autónoma Buenos Aires, Buenos Aires, Argentina

Hospital de Niños de La Santisima Trinidad

Córdoba, Córdoba Province, Argentina

Women's and Children's Hospital

North Adelaide, South Australia, Australia

Royal Children's Hospital Melbourne - PIN

Parkville, Victoria, Australia

Instituto Fernandes Figueira

Rio de Janeiro, Rio de Janeiro, Brazil

Hospital de Clinicas de Porto Alegre (HCPA) - PPDS

Porto Alegre, Rio Grande do Sul, Brazil

Hospital Pequeno Principe

Curitiba, Brazil

M.A.G.I.C. Clinic Ltd. Metabolics and Genetics in Calgary

Calgary, Alberta, Canada

University of Alberta Medical Genetics Clinic

Edmonton, Alberta, Canada

Centre Hospitalier de l'Universite de Montreal-1000 rue Saint-Denis

Montreal, Quebec, Canada

AP-HP - Hôpital Armand Trousseau

Paris, France

SphinCS GmbH

Höchheim, Germany

Amrita Institute of Medical Sciences and Research Centre

Ernākulam, Kerala, India

All India Institute of Medical Sciences (AIIMS) - New Delhi

New Delhi, National Capital Territory of Delhi, India

JK Lone Hospital

Jaipur, Rajasthan, India

Christian Medical College and Hospital

Vellore, Tamil Nadu, India

Fondazione IRCCS Istituto Neurologico Carlo Besta

Milan, Italy

Hospital Universitario Dr. Jose Eleuterio González

Monterrey, Nuevo León, Mexico

Centenario Hospital Miguel Hidalgo

Aguascalientes, Mexico

ULS de Santo António, EPE - Centro Materno Infantil Norte

Porto, Porto District, Portugal

ULS de Santa Maria,EPE - Hospital de Santa Maria - PPDS

Lisbon, Portugal

Hospital Universitario Vall d'Hebron - PPDS

Barcelona, Barcelona, Spain

Hospital Infantil Universitario Niño Jesus - PIN

Madrid, Madrid, Spain

Sahlgrenska universitetssjukhuset Östra

Gothenburg, Västra Götaland County, Sweden

Inselspital - Universitätsspital Bern

Bern, Canton of Bern, Switzerland

Balcali Hastanesi Saglik Uygulama ve Arastirma Merkezi

Adana, Adana, Turkey (Türkiye)

Gazi Universitesi Saglik Arastirma ve Uygulama Merkezi

Çankaya, Ankara, Turkey (Türkiye)

Ege Universitesi Tip Fakultesi

Bornova, İzmir, Turkey (Türkiye)

University College London Hospitals (UCLH)

London, Middlesex, United Kingdom

Great Ormond Street Hospital NHSFT

London, United Kingdom

Royal Manchester Children's Hospital

Manchester, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT07082543