RecruitingNot ApplicableNCT07157995

Phase 4 of Designed With You

Building Active Living and Addressing Needs for Caregiver Empowerment (BALANCE) Study - Phase 4 of Designed With You


Sponsor

Johns Hopkins University

Enrollment

20 participants

Start Date

Jan 1, 2026

Study Type

INTERVENTIONAL

Conditions

Summary

The purpose of this study is to provide evaluate the feasibility of a structured 8-10-week, multi-component intervention that integrates individualized resource navigation, personalized self-care planning, emergency and end of life (EOL) preparedness, and peer support to improve the well-being, resource access and social connectedness of caregivers with disabilities. For this study we are interested in caregivers over the age of 18 who have some form (e.g. mobility or sensory) disability and are caring for a person with a disability and/or a chronic illness.


Eligibility

Min Age: 18 Years

Inclusion Criteria4

  • years of age and older,
  • Community dwelling in the state of Maryland,
  • Self report of physical or sensory disability and
  • self-report of serving as a family caregiver for a person for at least 10 hours/week.

Exclusion Criteria2

  • have a terminal diagnosis (\<1 year expected survival), and
  • \> severe cognitive impairment (5-7 errors) based on the Short Portable Mental Status Questionnaire (SPMQ)

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Interventions

BEHAVIORALBALANCE Building Active LIving and Addressing Needs for Caregiver Empowerment

The Balance intervention will include individual visits by a Caregiver Navigator and group sessions with other participants, led by the caregiver navigator. The focus will be on future planning, resources for unmet needs and support and socialization.


Locations(1)

Johns Hopkins School of Nursing

Baltimore, Maryland, United States

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NCT07157995


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