RecruitingNCT07212166

A Study of Questionnaires in Adolescents and Young Adults With Cancer

Psychometric and Linguistic Validation of PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults (15-39) With Cancer


Sponsor

Memorial Sloan Kettering Cancer Center

Enrollment

120 participants

Start Date

Sep 30, 2025

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to evaluate a questionnaire called PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults.


Eligibility

Min Age: 15 YearsMax Age: 39 Years

Inclusion Criteria9

  • English- or Spanish proficient
  • o As assessed by two items: How well do you speak English? What is your preferred language for healthcare?
  • Between the ages of 15-39
  • Diagnosed with cancer or the recurrence of a cancer and/or received active treatment for cancer between the ages of 15-39
  • Able to complete questionnaires by themselves or with assistance
  • For Cohort 1 ONLY:
  • months from last treatment without plan to initiate any form of cancer-directed treatment in the next 3 months OR
  • On chronic cancer-directed therapy for the last 3 months without plan to change cancer-directed therapy in the next 3 months AND
  • ECOG Performance Status (0-4) or KPS Score (0-100)

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Interventions

OTHERPatient-Reported Outcome Surveys

PRO-AYA , Patient-Reported ECOG PS, EORTC QLQ-C30, Demographic/Clinical Characteristics

OTHERSpanish version of PRO-AYA and the cognitive interview

Revised Spanish PRO-AYA, Demographic/Clinical Characteristics


Locations(7)

Memorial Sloan Kettering Basking Ridge (Consent Only)

Basking Ridge, New Jersey, United States

Memorial Sloan Kettering Monmouth (Consent Only)

Middletown, New Jersey, United States

Memorial Sloan Kettering Bergen (Consent Only)

Montvale, New Jersey, United States

Memorial Sloan Kettering Commack (Consent Only)

Commack, New York, United States

Memorial Sloan Kettering Westchester (Consent Only)

Harrison, New York, United States

Memorial Sloan Kettering Cancer Center

New York, New York, United States

Memorial Sloan Kettering Nassau (Consent Only)

Uniondale, New York, United States

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NCT07212166