RecruitingNot ApplicableNCT07309367

Web-based Advance Care Planning Intervention for Patients With Kidney Failure on Dialysis: Pilot Testing of 'My Voice'


Sponsor

Duke-NUS Graduate Medical School

Enrollment

100 participants

Start Date

Oct 2, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

'My Voice' is a website intervention developed to enable advance care planning (ACP) conversations for patients with kidney disease on dialysis, educate patients on their illness, help identify their goals and preferences for EOL care, and coaches them on how to speak with their HCPs and loved ones. This study aims to evaluate if 'My Voice' intervention improves quality of ACP conversations between patients and providers, and patients and family carers; improves patient's knowledge about kidney failure, engagement in ACP and preparedness for future end of life care compared to usual practices for ACP in dialysis centres.


Eligibility

Min Age: 21 Years

Plain Language Summary

Simplified for easier understanding

This study is testing a web-based tool called 'My Voice' to help kidney failure patients on dialysis plan ahead for their medical care, including end-of-life decisions. The tool is designed to make it easier for patients and their families to have these important conversations. **You may be eligible if...** - You are a Singapore citizen or permanent resident aged 21 or older - You have severe chronic kidney disease (stage 5) and are currently on dialysis - Your health team has identified you as someone who may benefit from serious illness conversations (for example, your condition has been getting worse, dialysis has become hard to tolerate, you've been hospitalised multiple times recently, or you have limited ability to do daily tasks) - You have normal cognitive function (no significant memory or thinking problems) - You can speak and read English, Mandarin, or Malay **You may NOT be eligible if...** - You have cognitive impairment or a serious mental illness - You have already had formal serious illness conversations with your care team - You are not easily reachable by phone Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERMy Voice website intervention with patient and caregiver modules

'My Voice' is an interactive web-based ACP intervention tailored for patients with kidney failure on dialysis, and their caregivers, and includes patient and caregiver modules. Patient module has 6 steps consisting of a series of videos, value-clarification exercise (VCE) identifying goals and values for care, and knowledge quiz, and a summary My Voice document that is generated shared with patients, designated surrogates and HCPs. Automated reminders are sent to revisit My Voice. Caregiver module has 4 steps with videos and quiz, with access to their loved one's summary My Voice document containing goals of care and values.


Locations(1)

Duke NUS Medical School

Singapore, Singapore

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NCT07309367