RecruitingNCT07433010

German Dementia Registry


Sponsor

RWTH Aachen University

Enrollment

5,000 participants

Start Date

May 16, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

The German Dementia Registry (DEMREG) is a large-scale national prospective biomarker-based study for cognitive impairment and dementia, providing an integrated clinical research platform for research studies.


Eligibility

Min Age: 18 Years

Inclusion Criteria7

  • Ability of the participant and/or his/her legally authorized representative (e.g., spouse or legal guardian), as appropriate and applicable, to understand the purpose and risks of the register and provide signed and dated informed consent and authorization to use protected health information (PHI) in accordance with national and local privacy regulations.
  • Participating patients must have a diagnosis of SCD, MCI or early dementia of different etiology (i.e. Alzheimer's Disease, Frontotemporal Dementia, Parkinson's Disease, Lewy-Body Dementia, Progressive Supranuclear Palsy, Corticobasal Degeneration, Normal Pressure Hydrocephalus, Major Depression; Vascular Dementia; TDP-43 associated limbic encephalopathy (LATE), Mixed Dementia AD + VaD, Prion-Associated Dementia) together with biomarkers such as cerebrospinal fluids (CSF) amyloid beta 1-42, amyloid beta 1-40, amyloid beta 1-42/amyloid beta 1-40 ratio, total tau and phosphorylated tau, amyloid or tau imaging.
  • At least 18 years of age.
  • At least 18 years of age.
  • Patient was included in the registry
  • Family member is strongly involved to the patient's life according to the patient's statement
  • Ability of the participant, as appropriate and applicable, to understand the purpose and risks of the register

Exclusion Criteria3

  • Unwilling to provide informed consent.
  • No available biomarkers such as cerebrospinal fluids (CSF) amyloid beta 1-42, amyloid beta 1-40, amyloid beta 1-42/amyloid beta 1-40 ratio, total tau and phosphorylated tau, amyloid or tau imaging.
  • Unable or unwilling to provide informed consent.

Interventions

OTHERThis is a registry.

This is an observational study; no treatments are carried out within the scope of the registry. The usual treatment/medication of patients is merely documented. Additionally, using a variety of questionnaires and tests, data is generated from participants in relation to early dementia.


Locations(24)

Heidelberg University Hospital

Heidelberg, Baden-Wurttemberg, Germany

ZI Mannheim

Mannheim, Baden-Wurttemberg, Germany

University Hospital Tübingen

Tübingen, Baden-Wurttemberg, Germany

Ulm University Hospital

Ulm, Baden-Wurttemberg, Germany

Universitätsklinikum Erlangen

Erlangen, Bavaria, Germany

Klinikum Frankfurt (Oder)

Frankfurt (Oder), Brandenburg, Germany

Immanuel Klinik Rüdersdorf

Rüdersdorf, Brandenburg, Germany

Klinikum Bremen-Ost

Bremen, City state Bremen, Germany

Medical Center Hamburg-Eppendorf

Hamburg, Hamburg, Germany

Asklepios Klinik Nord

Hamburg, Hamburg, Germany

University Medical Center Göttingen

Göttingen, Lower Saxony, Germany

Greifswald University Medicine

Greifswald, Mecklenburg-Vorpommern, Germany

RWTH Aachen University Hospital

Aachen, North Rhine-Westphalia, Germany

University Hospital Cologne

Cologne, North Rhine-Westphalia, Germany

University Hospital Essen

Essen, North Rhine-Westphalia, Germany

Pfalzklinikum Klingenmünster

Klingenmünster, Rhineland-Palatinate, Germany

University Medical Center Mainz

Mainz, Rhineland-Palatinate, Germany

Saarland University Medical Center

Homburg, Saarland, Germany

University of Leipzig Medical Center

Leipzig, Saxony, Germany

Madical Faculty University Hospital Magdeburg

Magdeburg, Saxony-Anhalt, Germany

University Hospital Schleswig-Holstein

Kiel, Schleswig-Holstein, Germany

Charité - Universitätsmedizin Berlin

Berlin, State of Berlin, Germany

Charité Campus Benjamin Franklin

Berlin, State of Berlin, Germany

University Hospital Jena

Jena, Thuringia, Germany

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NCT07433010