RecruitingNCT07505342

Remote Assessments and Genetic Determinants of Myotonic Dystrophy

REACH DM - Remote Assessments and Genetic Determinants of Myotonic Dystrophy


Sponsor

University of Rochester

Enrollment

1,000 participants

Start Date

May 10, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of this observational study, conducted in participants' homes and requiring no travel to a study site, is to better understand disease variability in people with myotonic dystrophy type 1 (DM1) and to identify effective ways to measure symptoms. Myotonic dystrophy is one of the most variable diseases. Some people develop symptoms when they are young, others when they are much older. In the same family, some people may have mild problems, while others are strongly affected. The goal of this study is to find out more about what is causing these differences. To accomplish this, investigators will study the effects of DM1 on skeletal and smooth muscles, the heart, and the nervous system. Then, investigators will evaluate genetic differences with a blood sample. * Participants will receive a toolkit in the mail which includes all necessary equipment to participate in the study, including an iPad with video conferencing software. * Then the study team will connect with participants via videoconferencing for medical interview about DM1 symptoms and functional assessments * Participants will have their blood drawn in a lab in their community or using a home draw device, and ship it to us for research genetic analysis * Participants can chose to have their research genetic test result returned to them


Eligibility

Min Age: 18 YearsMax Age: 88 Years

Inclusion Criteria5

  • Age 18-88 years
  • Clinical diagnosis of DM1
  • English speaking
  • Able to provide informed consent
  • Available wifi

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Locations(1)

University of Rochester

Rochester, New York, United States

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NCT07505342


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