Endometriosis Self-Management Strategies
Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
Wageningen University and Research
150 participants
Jan 19, 2026
OBSERVATIONAL
Conditions
Summary
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis? Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Eligibility
Inclusion Criteria4
- living in a European country
- years or older
- having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
- fluent in a language spoken by the research team
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Locations(1)
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NCT07591441