Adult Bladder and Quality of Life Evaluation in Spina Bifida
Patient Reported Outcomes for Bladder Management Strategies in Young Adults With Spina Bifida
Blayne Welk
300 participants
Jan 1, 2025
OBSERVATIONAL
Conditions
Summary
Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.
Eligibility
Inclusion Criteria4
- Diagnosis of SB
- Age ≥13 years of age
- Able to effectively communicate in English or Spanish
- Willing to provide informed consent for participation and answer a set of questionnaires
Exclusion Criteria3
- Reconstructive surgery or urinary diversion in the last 3 months
- Hospital admission in the last 1 month
- Inconsistent or newly changed (within the last month) method of bladder management
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Locations(1)
View Full Details on ClinicalTrials.gov
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NCT07642466