Patient Registry Clinical Trials
6 recruitingOther
Showing 1–6 of 6 trials
Recruiting
The Spanish National Registry for Myotonic Dystrophy Type 1
Myotonic Dystrophy 1Myotonic Dystrophy Type 1DM1+2 more
Fundació Institut Germans Trias i Pujol3,000 enrolled8 locationsNCT07385443
Recruiting
Natural History Study of Patients with HPDL Mutations
Neonatal EncephalopathyGenetic DiseaseMutation+4 more
University of California, San Diego50 enrolled1 locationNCT05848271
Recruiting
UK SMA Patient Registry
Spinal Muscular AtrophySMA
Newcastle University800 enrolled1 locationNCT04292574
Recruiting
The United Kingdom Facioscapulohumeral Muscular Dystrophy Patient Registry
Newcastle University1,018 enrolled1 locationNCT04001582
Recruiting
The United Kingdom National Registry for Myotonic Dystrophy
Myotonic Dystrophy
Newcastle University900 enrolled1 locationNCT04003363
Recruiting
Preterm Lung Patient Registry
Bronchopulmonary Disease
Boston Children's Hospital1,500 enrolled1 locationNCT00951366