Transition Mate: A Mobile Phone App to Support Self-Management and Transition in Young People with Chronic Illness
Professor Katharine Steinbeck
70 participants
May 13, 2019
Interventional
Conditions
Summary
Mobile technology has been proposed as an innovative opportunity to assist in improving the management of chronic illnesses as young people transition to adult care services. The TransitionMate study is the first trial that we can identify of a generic mobile application for the self-management of a cohort of adolescents with chronic illnesses transitioning from paediatric to adult care services. It is a two centre, pragmatic, single arm, mixed methods cohort study conducted within two University Teaching Paediatric Hospitals in Sydney, Australia. We hypothesis that use of the TransitionMate mobile application will result in improved engagement and retention of adolescents with chronic illness within adult services as well as reduce deterioration in illness control and unplanned hospitalisations.e with chronic illness in their transition from paediatric to adult health care services.
Eligibility
Inclusion Criteria3
- Current patients of The Sydney Children’s Hospital Network who have a chronic illness (for example, Type 1 Diabetes Mellitus, Cystic Fibrosis, Inflammatory Bowel disease)
- Transitioning to adult services within the next 12 months.
- Consent to use the TransitionMate app and follow-up for 18 months
Exclusion Criteria3
- Intellectual disability affecting use of mobile phone application
- Primary diagnosis of mental health disorder
- No access to personal iPhone/Android mobile phone
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Interventions
Downloading and use of the Transition Mate mobile phone application as an intervention to assist transition of adolescents from paediatric to adult clinic services. The Transition Mate mobile phone application is downloaded onto the participant's mobile phone once the study has been explained and consent has been obtained. Download is performed by the participant under the guidance of the researcher. The download would be available from the Apple Store (ios) or Google Play Store (android). Use of the application would involve the participant opening the mobile application and using the features within. These features are: • To do lists • Appointment schedules • Medication Lists • Linking with calendar and contact. • Images (Take and save photos) • Mood tracker The number of times the intervention (Transition Mate application) and the features used are determined by the participant. This will be reviewed at the 6, 12 and 18 months followup phone calls as well as using application analytics (these are de-identified, with cohort data available for analysis)
Locations(2)
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ACTRN12620000074998