RecruitingACTRN12620000074998

Transition Mate: A Mobile Phone App to Support Self-Management and Transition in Young People with Chronic Illness


Sponsor

Professor Katharine Steinbeck

Enrollment

70 participants

Start Date

May 13, 2019

Study Type

Interventional

Conditions

Summary

Mobile technology has been proposed as an innovative opportunity to assist in improving the management of chronic illnesses as young people transition to adult care services. The TransitionMate study is the first trial that we can identify of a generic mobile application for the self-management of a cohort of adolescents with chronic illnesses transitioning from paediatric to adult care services. It is a two centre, pragmatic, single arm, mixed methods cohort study conducted within two University Teaching Paediatric Hospitals in Sydney, Australia. We hypothesis that use of the TransitionMate mobile application will result in improved engagement and retention of adolescents with chronic illness within adult services as well as reduce deterioration in illness control and unplanned hospitalisations.e with chronic illness in their transition from paediatric to adult health care services.


Eligibility

Sex: Both males and femalesMin Age: 16 YearssMax Age: 21 Yearss

Plain Language Summary

Simplified for easier understanding

Moving from children's health services to adult health services is a stressful transition for young people with chronic illnesses like Type 1 diabetes, cystic fibrosis, or inflammatory bowel disease. During this changeover, young people often disengage from care, leading to worsening health. This study is testing a smartphone app called TransitionMate, designed to help young people manage their health independently and stay connected to adult care services during this critical period. Participants use the app for up to 18 months as they make the transition to adult services. The app supports self-management, provides reminders, and acts as a health companion during what can be a confusing and unsupported time. Researchers will track whether the app reduces emergency hospitalisations and helps young people stay engaged with their care. You may be eligible if you are aged 16 to 21, are a current patient of the Sydney Children's Hospital Network with a chronic illness, and are transitioning to adult services within the next 12 months. You must own a personal smartphone (iPhone or Android). Young people with intellectual disability affecting phone use, or whose primary diagnosis is a mental health disorder, are not eligible.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

Downloading and use of the Transition Mate mobile phone application as an intervention to assist transition of adolescents from paediatric to adult clinic services. The Transition Mate mobile phon

Downloading and use of the Transition Mate mobile phone application as an intervention to assist transition of adolescents from paediatric to adult clinic services. The Transition Mate mobile phone application is downloaded onto the participant's mobile phone once the study has been explained and consent has been obtained. Download is performed by the participant under the guidance of the researcher. The download would be available from the Apple Store (ios) or Google Play Store (android). Use of the application would involve the participant opening the mobile application and using the features within. These features are: • To do lists • Appointment schedules • Medication Lists • Linking with calendar and contact. • Images (Take and save photos) • Mood tracker The number of times the intervention (Transition Mate application) and the features used are determined by the participant. This will be reviewed at the 6, 12 and 18 months followup phone calls as well as using application analytics (these are de-identified, with cohort data available for analysis)


Locations(2)

The Children's Hospital at Westmead - Westmead

NSW, Australia

Sydney Children's Hospital - Randwick

NSW, Australia

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ACTRN12620000074998


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