RecruitingACTRN12621000032853

Understanding Maori People's Experience with iPad App ADOC-M/P for Goal Setting in Rehabilitation

Field Testing a Maori/Pacific Version of a Japanese iPad App to Support Culturally Responsive Goal Setting in Clinical Rehabilitation: A Qualitative Study

Sponsor

University of Otago, Wellington

Enrollment

12 participants

Start Date

Oct 29, 2020

Study Type

Interventional

Conditions

Fractures Stroke Disability

Summary

This study aims to investigate the experiences of patients and health professionals with our iPad app ADOC-M/P. ACOD-M/P stands for Aid for Decision making in Occupational Choice - Maori and Pacific. This app is a Maori and Pacific adaption of a Japanese app called ADOC. ADOC-M/P presents a range of illustrations depicting various activities. These illustrations can be selected to represent goals for the patient and health professional to work towards in rehabilitation. We are expecting that our app will help the health professional communicate with the patient during goal setting in rehabilitation. From this, we are hoping that the patient and health professional can set meaningful goals to work towards during rehabilitation.

Eligibility

Sex: Both males and femalesMin Age: 16 Yearss

Plain Language Summary

Simplified for easier understanding

After a stroke, brain injury, or other health event requiring rehabilitation, setting the right goals is critical to recovery. However, meaningful goal-setting can be challenging — especially when patients and their healthcare team have different ideas about what is most important, or when cultural identity isn't fully reflected in the process. This study is exploring the experiences of Maori patients and health professionals using a specially adapted iPad app called ADOC-M/P (Aid for Decision-making in Occupational Choice — Maori and Pacific). The app uses culturally tailored illustrations of everyday activities to help patients and their therapists identify goals that are personally meaningful. It was adapted from a Japanese app to better represent Maori and Pacific ways of living and thinking about occupation. Patients may participate if they are aged 16 or older, identify as Maori, are currently receiving rehabilitation at Whanganui District Health Board (e.g. after a stroke, head injury, or fracture), can communicate in English, and are able to provide consent. Health professionals employed at the DHB who conduct goal-setting as part of their role are also invited to take part. The study will involve using the app during a goal-setting session and then sharing your thoughts in an interview.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

The intervention in this study is the use of our iPad app 'ADOC-M/P' which stands for Aid for Decision-making in Occupational Choice - Maori and Pacific version. This app is an adaption of the Japanese app ADOC. The app presents a catalogue of illustrations depicting various activities which the clinician uses to facilitate the collaborative goal-setting process with the patient. The app works by allowing the patient and therapist to individually choose up to 20 goals that they would like to work towards during rehabilitation. Then the app presents the selections together so the patient and therapist can choose 5 goals to create a rehabilitation plan. There is later a section where details regarding each specific goal may be typed up (time frame, therapist in charge, specific definition of the activity.) The app then creates a pdf with the 5 selected goals which can then be printed off an signed by the therapist and the patient. The intervention may be delivered by any person who is employed by Whanganui district health board to work with rehabilitation patients. (Such as a physiotherapist, nurse, occupational therapist, or speech/language therapist.) Goal setting with our iPad app will be conducted by the therapist as they judge clinically appropriate. The goal setting process is face-to-face between the clinician and the patient, the iPad will be passed between the therapist and patient as necessary. The duration of goal setting with the app can be as short as 15 minutes but could be as long as 2 hours depending on how the app is used. The therapist does not need to be present when the patient is selecting their goals and the patient does not need to be present when the therapist is selecting their goals either. We will ask the clinician if they have used the app with patients/a specific patient to measure adherence. We are not employing any other strategies to measure adherence. The participating patients with or without whanau (friends/family) will attend at least one goal setting session to be eligible for the trial. Participating patients must be able to provide informed consent. The data collection will take place in an inpatient setting after the patient has had their goal setting session. The data collection will occur immediately after the goal setting session to up to 3 weeks after goal setting.