RecruitingNCT01484236
National Lymphangioleiomyomatosis Registry, France
Sponsor
Vincent COTTIN
Enrollment
200 participants
Start Date
Jan 1, 2012
Study Type
OBSERVATIONAL
Conditions
Summary
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis. Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.
Eligibility
Min Age: 18 Years
Inclusion Criteria2
- Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
- patients diagnosed or hospitalized or seen in consultation since 01/01/2008
Exclusion Criteria1
- None
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Locations(1)
View Full Details on ClinicalTrials.gov
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NCT01484236
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