RecruitingNCT02398786
Myotonic Dystrophy Family Registry
Sponsor
Myotonic Dystrophy Foundation
Enrollment
3,500 participants
Start Date
Feb 1, 2013
Study Type
OBSERVATIONAL
Conditions
Myotonic DystrophyMyotonic Dystrophy 1Dystrophia MyotonicaCongenital Myotonic DystrophyMyotonic Dystrophy, CongenitalSteinert DiseaseMyotonic Dystrophy 2Dystrophia Myotonica 1Dystrophia Myotonica 2Myotonia DystrophicaMyotonic Myopathy, ProximalPROMM (Proximal Myotonic Myopathy)Proximal Myotonic MyopathySteinert Myotonic DystrophySteinert's DiseaseMyotonia Atrophica
Summary
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Eligibility
Inclusion Criteria1
- Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)
Exclusion Criteria1
- Not diagnosed with DM, unaffected family members
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Interventions
OTHERPatient-entered data
This registry provides patient-entered data for future clinical trial and study use.
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT02398786
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