RecruitingNCT02398786

Myotonic Dystrophy Family Registry

Sponsor

Myotonic Dystrophy Foundation

Enrollment

3,500 participants

Start Date

Feb 1, 2013

Study Type

OBSERVATIONAL

Conditions

Myotonic Dystrophy Myotonic Dystrophy 1 Dystrophia Myotonica Congenital Myotonic Dystrophy Myotonic Dystrophy, Congenital Steinert Disease Myotonic Dystrophy 2 Dystrophia Myotonica 1 Dystrophia Myotonica 2 Myotonia Dystrophica Myotonic Myopathy, Proximal PROMM (Proximal Myotonic Myopathy)Proximal Myotonic Myopathy Steinert Myotonic Dystrophy Steinert's Disease Myotonia Atrophica

Summary

The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.

Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying Patient-entered data for people with congenital myotonic dystrophy, dystrophia myotonica, and other related conditions. The study is currently recruiting participants at 1 location.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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