RecruitingNCT02817997

International Registry for Patients With Castleman Disease

ACCELERATE (Advancing Castleman Care With an Electronic Longitudinal Registry, E-Repository, And Treatment/Effectiveness Research): An International Registry for Patients With Castleman Disease

Sponsor

University of Pennsylvania

Enrollment

1,000 participants

Start Date

Oct 1, 2016

Study Type

OBSERVATIONAL

Conditions

Castleman Disease Castleman's Disease Giant Lymph Node Hyperplasia Angiofollicular Lymph Hyperplasia Angiofollicular Lymph Node Hyperplasia Angiofollicular Lymphoid Hyperplasia GLNH Hyperplasia, Giant Lymph Node Lymph Node Hyperplasia, Giant

Summary

The purpose of this study is to collect clinical, laboratory, and patient survey data from patients with Castleman disease to improve understanding, diagnosis, and treatment of the disease. Funding source - FDA OOPD.

Eligibility

Inclusion Criteria4

Person of any age
Have a reference pathology report suggesting "Castleman disease" not limited to cutaneous involvement only that can be uploaded
Be able to provide electronic informed consent, as per local regulations
Deceased patients may also be enrolled when a reference pathology report suggesting "Castleman disease" can be supplied or when the ART is able to locate and upload such a pathology report.

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