RecruitingNCT02848274

ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

Prospective Multicenter International Observational Study for Determination of a Cutaneous Lymphoma International Prognostic Index Model and Impact of Major Therapies in Patients With Advanced Mycosis Fungoides and Sézary Syndrome


Sponsor

Stanford University

Enrollment

2,000 participants

Start Date

Oct 1, 2016

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.


Eligibility

Plain Language Summary

Simplified for easier understanding

This study is identifying which factors predict outcomes in patients with advanced mycosis fungoides or Sézary syndrome — rare types of blood cancer that mainly affect the skin — to improve how doctors manage and treat these conditions. **You may be eligible if...** - You have been diagnosed with advanced mycosis fungoides or Sézary syndrome at stages IIB through IVB - You were diagnosed within 6 months of first coming to the participating center - Your care is expected to be provided at or coordinated with the participating center so that follow-up data can be collected **You may NOT be eligible if...** - You had early-stage disease before progressing to advanced stage and were diagnosed at that early stage at another center - You were diagnosed more than 6 months before your first visit to the participating center - You are only coming for a single one-time consultation Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(13)

City of Hope

Duarte, California, United States

Stanford University, School of Medicine

Palo Alto, California, United States

University of Iowa

Iowa City, Iowa, United States

Hackensack University Medical Center

Hackensack, New Jersey, United States

University of Pittsburg

Pittsburgh, Pennsylvania, United States

University of Texas Southwestern

Dallas, Texas, United States

University of Utah Hospital

Salt Lake City, Utah, United States

Hospital Italiano de Buenos Aires

Buenos Aires, Argentina

Peter MacCallum Cancer Center,

Melbourne, Australia

University of Sao Paulo Medical School

São Paulo, Brazil

Peking University First Hospital

Beijing, China

The University of Tokyo

Tokyo, Japan

University Hospitals Birmingham

Birmingham, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT02848274


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