RecruitingNCT02852928

European Management Platform for Childhood Interstitial Lung Diseases - chILD-EU Register and Biobank

Orphans Unite: chILD Better Together - European Management Platform for Childhood Interstitial Lung Diseases / chILD-EU - International Register and Biobank for Children´s Interstital Lung Disease


Sponsor

Matthias Griese

Enrollment

1,000 participants

Start Date

Dec 1, 2013

Study Type

OBSERVATIONAL

Conditions

Summary

Generation of a common European database and biobank Continous assessment and implementation of guidelines and treatment protocols Establishment of a large observational cohort of chILD patients Determination the value of outcomes used in child Assess treatment variations used, deliver data from defined protocols and linked outcomes


Eligibility

Inclusion Criteria4

  • all children with suspected or
  • verified diagnosis of ILD or
  • masquerading as ILD and
  • those with rare localized parenchymal lung diseases

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Locations(3)

Medizinische Hochschule Hannover

Hanover, Lower Saxony, Germany

Hacettepe University, Medical Faculty

Ankara, Sihhiye, Turkey (Türkiye)

University of Edinburgh

Edinburgh, United Kingdom

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NCT02852928


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