RecruitingNCT03949972

The FOrMe Registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry)


Sponsor

Prof. Dr. Paul Brinkkoetter

Enrollment

500 participants

Start Date

Apr 1, 2018

Study Type

OBSERVATIONAL

Conditions

Summary

In a monocentric, later multicentric prospective approach the FOrMe registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry) aims to generate a longitudinal cohort of 150 pediatric cases of idiopathic nephrotic syndrome and 350 adult cases of biopsy-proven Minimal Change Disease (MCD) or Focal and Segmental Glomerular Sclerosis (FSGS) over 10 years. The registry will provide a repository for biomaterials such as blood samples, DNA, urine, feces, and tissue biopsies that will be accessible to collaborators to facilitate future research on pathogenesis, diagnostics, and treatment.


Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying Biosampling for people with glomerulosclerosis, focal segmental, idiopathic nephrotic syndrome, and other related conditions. The study is currently recruiting participants at 12 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERBiosampling

Biosampling at initial visit and follow-up visits


Locations(12)

University Hospital of Cologne

Cologne, North Rhine-Westphalia, Germany

Uniklinik RWTH Aachen

Aachen, Germany

Charité University Hospital

Berlin, Germany

Kindernierenzentrum Bonn

Bonn, Germany

Kindernephrologie Dachau

Dachau, Germany

University Hospital Erlangen

Erlangen, Germany

University Hospital Essen

Essen, Germany

University Hospital Heidelberg

Heidelberg, Germany

Klinikum St. Georg

Leipzig, Germany

University Hospital Marburg

Marburg, Germany

University Hospital Münster

Münster, Germany

Klinikum Stuttgart

Stuttgart, Germany

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NCT03949972


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