The FOrMe Registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry)

The FOrMe Registry is a German national registry for patients with focal segmental glomerulosclerosis (FSGS) — a kidney disease where scar tissue forms in the kidney's filtering units (glomeruli), causing protein loss in urine and progressive kidney failure. FSGS is a rare and serious condition, and because patient numbers at any one center are small, a national registry is essential to gather enough data to understand the disease and develop better treatments. By enrolling patients across Germany, the registry will track disease course, treatment responses, complications, and long-term outcomes. Patients contribute data to a shared resource that benefits everyone with this condition. You may be eligible if: - You have been diagnosed with focal segmental glomerulosclerosis (FSGS) - You are being treated at a participating German medical center - You consent to contribute your medical data to the registry You may NOT be eligible if: - You have another form of kidney disease (not FSGS) - You are unable to provide informed consent - You do not receive care at a participating center Talk to your doctor to see if this trial is right for you.