NEPTUNE Match Study
Implementing Precision Medicine for Glomerular Diseases in the Nephrotic Syndrome Study Network (NEPTUNE)
University of Michigan
375 participants
May 2, 2022
INTERVENTIONAL
Conditions
Summary
NEPTUNE Match is an additional opportunity offered to NEPTUNE study participants to prospectively recruit and communicate patient-specific clinical trial matching with kidney patients and their physician investigators.
Eligibility
Inclusion Criteria5
- Consented and eligible participants in the biopsied or non-biopsied cohorts of the NEPTUNE observational study
- Must be potentially eligible for the NEPTUNE Match partnering trials (e.g. if no trial is enrolling a participant under age 6, those under 6 are not eligible).
- Note: NEPTUNE Match partnering trials and associated eligibility criteria are expected to be dynamic and change as trial protocols are developed, activated, and amended.
- Regular nephrology healthcare provided at a NEPTUNE study site.
- Willing and able to consent, and as appropriate assent, to participate in NEPTUNE Match
Exclusion Criteria2
- Currently non-NEPTUNE observational study participants are not eligible to be matched to a clinical trial using these biomarker assessments.
- \. Non-English or non-Spanish speaking
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Interventions
The NEPTUNE Match study includes an interdisciplinary Communication Team that will translate findings from the Molecular Nephrology Board (MNB) to inform patients of the matching assessment with ongoing clinical trials. This team has considerable experience with conveying complex biomedical research information to patients and families and includes experts in precision nephrology, nephrology patient \[adult and pediatric\] communication, and health education.
Locations(16)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04571658