ADPKD Patient Registry
Autosomal Dominant Polycystic Kidney Disease Patient Registry
PKD Foundation
3,000 participants
Sep 4, 2019
OBSERVATIONAL
Conditions
Summary
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.
Eligibility
Inclusion Criteria1
- Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD)
Exclusion Criteria1
- caretakers, family members or friends of individuals with ADPKD
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Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04039061