RecruitingNCT04158284

Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

KRANIOPHARYNGEOM Registry 2019 Multicenter Registry for Patients With Childhood-onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts


Sponsor

Klinikum Oldenburg gGmbH

Enrollment

90 participants

Start Date

Oct 1, 2019

Study Type

OBSERVATIONAL

Conditions

Summary

KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.


Eligibility

Min Age: 1 DayMax Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This is an international registry collecting long-term data on children and teenagers who have been diagnosed with rare brain and pituitary tumors, including craniopharyngioma, pituitary adenoma, meningioma, Rathke's cleft cysts, and arachnoid cysts. The registry helps researchers understand how these conditions progress over time and which treatments work best. **You may be eligible if...** - You were diagnosed with craniopharyngioma for the first time - You were 18 years old or younger at the time of diagnosis - A parent, legal guardian, and/or the patient has agreed to participate **You may NOT be eligible if...** - You were older than 18 at the time of diagnosis - Your diagnosis is something other than craniopharyngioma Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Klinikum Oldenburg

Oldenburg, Lower Saxony, Germany

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NCT04158284


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