RecruitingNCT04284189

Aftercare of Childhood Cancer Survivors in Switzerland

Aftercare of Childhood Cancer Survivors in Switzerland - the ACCS Switzerland Project

Sponsor

Kantonsspital Aarau

Enrollment

140 participants

Start Date

Feb 12, 2019

Study Type

OBSERVATIONAL

Conditions

Survivorship Childhood Cancer Transition

Summary

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.

Eligibility

Min Age: 16 Years

Inclusion Criteria6

-year survivor of childhood cancer
Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
Age at diagnosis <18 years
Age at study ≥16 years
At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
Written informed consent

Exclusion Criteria5

Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
<5 years after therapy of a relapse or palliative situation
Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
Insufficient knowledge of the German language
Informed consent form not signed

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