Living With Primary Ciliary Dyskinesia (Living With PCD)
Living With Primary Ciliary Dyskinesia (Formerly COVID-PCD)
University of Bern
1,500 participants
May 31, 2020
OBSERVATIONAL
Conditions
Summary
Living with PCD (formerly COVID-PCD) is a participatory research project that aims to answer emerging questions about primary ciliary dyskinesia (PCD) in order to improve the health and quality of life of people with PCD. Persons with confirmed or suspected PCD from anywhere in the world can participate. The study is advertised through patient support groups and participants register online after they read detailed information about the study. Participants receive a detailed questionnaire when they start the study and a follow-up questionnaire (planned once per year). Occasionally, participants receive extra questionnaires focused on special topics. The study is hosted at the University of Bern and recruitment started on May 30th, 2020.
Eligibility
Inclusion Criteria1
- People of any age with reported suspected or confirmed Primary Ciliary Dyskinesia who gave consent to participate in the study
Exclusion Criteria1
- People who report not to have suspected or confirmed Primary Ciliary Dyskinesia
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Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04602481