RecruitingNCT04839003

A Registry of AL Amyloidosis (ReAL)

A Registry to Investigate Real-world Natural History, Impact of Therapies and Patterns of Progression of AL Amyloidosis (ReAL)


Sponsor

Fondazione IRCCS Policlinico San Matteo di Pavia

Enrollment

5,000 participants

Start Date

Feb 27, 2020

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this protocol is to generate a large registry of patients with AL amyloidosis.


Eligibility

Min Age: 18 YearsMax Age: 99 Years

Inclusion Criteria5

  • diagnosis of systemic AL amyloidosis;
  • treatment-naïve (pre-treatment data collected at participating center available for retrospective part);
  • age ≥18 years;
  • ability to understand and willingness to sign an informed consent (patients who already sign informed consent for clinical data to be used in retrospective analyses will be accepted);
  • planned (or ongoing) follow-up at participating center.

Exclusion Criteria2

  • non-AL amyloidosis;
  • previous treatment for AL amyloidosis.

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Locations(1)

Fondazione IRCCS Policlinico San Matteo

Pavia, Italy

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NCT04839003


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