RecruitingNCT05532982

Parkinson's Disease in Asian Americans

Barriers and Motivators Associated With Access to Care and Participation in Research Studies for Parkinson's Disease Among Asian Americans


Sponsor

Tufts University

Enrollment

430 participants

Start Date

Oct 15, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

The ultimate goal of this project is to use the findings to develop culturally appropriate programs and resources that can be disseminated to key stakeholders to improve access to PD care and increase inclusivity in PD research for Asian Americans. This study will serve as a first step towards developing broader community and patient education programs and active outreach campaigns to increase PD-specific literacy among Asian Americans. The results from this study will elucidate the role that language barriers, cultural perceptions, family influence, and other predisposing, enabling, or need factors have on delaying care for PD among Asian Americans. It will also provide much needed insight on how to improve inclusion of Asian Americans in PD research studies.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is investigating how Parkinson's disease (PD) affects Chinese and Vietnamese American communities, looking at differences in diagnosis, treatment, and healthcare access. It combines a chart review with interviews of patients, caregivers, and clinicians. **You may be eligible if...** - You are 18 or older - You are of Chinese or Vietnamese ethnicity - You have a diagnosis of Parkinson's disease, OR you are a primary caregiver (spouse or first-degree family member) of an Asian American PD patient, OR you are a clinician who treats PD patients, OR you are a community advocate working with the Asian elderly population - For interview participants: you can participate by phone or Zoom and provide informed consent **You may NOT be eligible if...** - You do not fall into one of the above categories - For chart review: your medical records are not from the Tufts Medical Center Movement Disorders Clinic (2010–2019) Talk to your doctor or a study coordinator to see if this study is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERInterviews and Surveys

Qualitative interviews and surveys


Locations(1)

Tufts University School of Medicine

Boston, Massachusetts, United States

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NCT05532982


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