RecruitingNCT05627219

Extending Prostate Genetic Awareness, Navigation, and Delivery: The EXPAND Network

Peer Genetic Coaches for Enhancing Genetic Testing Awareness, Navigation, and Delivery Among African American Men With Metastatic Prostate Cancer, The EXPAND Network


Sponsor

Thomas Jefferson University

Enrollment

30 participants

Start Date

Jun 3, 2024

Study Type

OBSERVATIONAL

Conditions

Summary

This trial evaluates whether a network of peer genetic coaches is useful for addressing disparities in genetic testing and screening among African American men with prostate cancer that has spread from where it first started (primary site) to other places in the body (metastatic). While genetic testing has become central to prostate cancer care, African American men are less likely seek testing due to lack of awareness, cultural beliefs, financial limitations, fear of discrimination, and mistrust in the healthcare system. A network of peer genetic coaches may help address barriers, beliefs, and needs of African American men in the community and provide navigation to increase engagement in genetic testing.


Eligibility

Sex: MALEMin Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is building a network to help African American men with prostate cancer access genetic counseling and testing more easily. Some prostate cancers are linked to inherited gene mutations (like BRCA2), and knowing this can guide treatment decisions and help family members. The study trains peer navigators and provides genetic testing outreach within African American communities. **You may be eligible if...** - You are an African American man, 18 or older - You have metastatic prostate cancer, high-risk prostate cancer, or a strong family history of prostate, breast, ovarian, pancreatic, or colorectal cancer - OR you are a man (of any background) with experience in prostate cancer and genetic counseling who can serve as a peer navigator or educator - You can read and speak English comfortably **You may NOT be eligible if...** - You are under 18 - You have significant anxiety or difficulty understanding the consent process Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALTraining and Education

Undergo training and education

OTHEREducational Intervention

Receive educational booklet

PROCEDUREDiscussion

Attend discussion with peer genetic coach


Locations(1)

Sidney Kimmel Cancer Center at Thomas Jefferson University

Philadelphia, Pennsylvania, United States

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NCT05627219


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