RecruitingNot ApplicableNCT05745285

Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

The Impact of a Non-Profit Cancer Advocacy Organization on Patient Reported Outcomes and Access to Care: A Multisite, Longitudinal Trial


Sponsor

University of Miami

Enrollment

400 participants

Start Date

Feb 4, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is looking at whether services offered by the Leukemia and Lymphoma Society (LLS) — such as patient support programs, financial assistance, and education resources — improve health outcomes and quality of care for blood cancer patients. **You may be eligible if...** - You have been diagnosed with or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN) - You are currently in treatment (started within the past 18 months), plan to start treatment within one month, OR have had a bone marrow transplant or CAR-T cell therapy within the past 100 days - You speak English or Spanish - You are willing to be followed for 6 months **You may NOT be eligible if...** - You are not being treated for one of the listed blood cancers - You are already using LLS programs or services - You are not willing to complete the 6-month follow-up Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERLLS Program

The intervention will be conducted virtually. Participants will receive LLS's free patient and caregiver services including co-pay assistance, transportation and urgent need assistance, a scholarship program for young adult patients and survivors, one-on-one peer-to-peer support, online chats and support groups facilitated by clinical social workers, and nutrition counseling with a registered dietician for 6 months.


Locations(3)

Sylvester Comprehensive Cancer Center

Miami, Florida, United States

University of Chicago Comprehensive Cancer Center

Chicago, Illinois, United States

Mays Cancer Center at UT Health San Antonio

San Antonio, Texas, United States

View Full Details on ClinicalTrials.gov

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NCT05745285


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