RecruitingNot ApplicableNCT05772689

Caregiving While Black

Caregiving While Black: Optimizing Outcomes for Black Dementia Caregivers

Sponsor

Emory University

Enrollment

140 participants

Start Date

May 6, 2023

Study Type

INTERVENTIONAL

Conditions

Caregiver Burden

Summary

The goal of this project is to revise and test an online education program designed to enhance the mastery of Black American caregivers to provide care to family members or friends living with a dementia illness. This study has two phases, and participants will take part in Phase 1 and/or Phase 2 of this study. Participants will take part in one and/or both phases in this study if they are a caregiver to a person living with dementia. Caregivers must self-identify as Black American and as the unpaid principal caregiver of a community-dwelling person living with a dementia illness and who is the principal companion of that person during healthcare encounters. Caregivers must also be 18 years of age or older and will be providing at least some hands-on care multiple times a week, if not daily. It is preferred that participants have access to and the ability to use broadband internet services to engage with the Caregiving While Black course. Participants should not have a plan in place to move the person living with a dementia illness to an institutional setting within the next six months.

Eligibility

Min Age: 18 Years

Inclusion Criteria6

years or older
family member (or friend) who self-identifies as Black American and as the principal caregiver of a community-dwelling person living with dementia (PLWD), (not in hospice care) and who is the principal companion of that person during healthcare encounters;
provides some hands-on care multiple times a week;
has access to an electronic device and/or access to broadband internet; and
able to speak and understand English.
Caregivers are not required to be co-located with the care recipient.

Exclusion Criteria5

Those who cannot provide consent,
are not yet adults (<18 years of age),
prisoners, cognitively impaired adults,
has plans to relinquish caring responsibilities for PLWD or considering moving the PLWD to an institutional setting within the next 6 months, and
who are not able to clearly understand English.

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Interventions

OTHERUsual Care

Caregivers assigned to the usual care group will be enrolled in the course at the 3-month mark after consenting. All caregivers will then participate in quantitative interviews at post- 6months of their baseline

OTHERCaring While Black

Caregivers assigned to this group will receive a schedule for their completion of the course over the next 2 months and supplemental course materials through the mail. The Canvas platform will enable the course to monitor everyone's movement in the cohort through the asynchronous part of the course. Nudges and reminders will be sent twice a week via text or email with the participant's consent.