Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome
Marfan&Moves (M&M's) : an Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome: an Interventional, Prospective, Monocentric Study.
University Hospital, Toulouse
30 participants
Apr 24, 2023
INTERVENTIONAL
Conditions
Summary
This research study aims to evaluate the effect of a 6-month adapted physical activity program (APA) on the endurance capacities (evaluated as the maximum oxygen consumption \[VO2 peak\] on a cardiopulmonary exercise test) of children and adolescents with Marfan syndrome or related.
Eligibility
Inclusion Criteria4
- Genetically confirmed Marfan syndrome or related syndrome
- Girl or boy aged 7 to 17
- Informed and written consent signed by at least one of the two holders of parental authority
- Patient affiliated to a social security scheme or equivalent
Exclusion Criteria5
- Cardiac contraindications to the APA program:
- Severe aortic dilation (aortic diameter \> 45 mm)
- and/or left ventricular failure (left ventricular ejection fraction \<45%)
- and/or severe mitral leakage ≥ grade 3
- Pregnancy
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Interventions
The Adaptated Physical Activity program will consist of a Personalized Training Program
Locations(1)
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NCT05838235