RecruitingNot ApplicableNCT05908487

African Americans (AA) Communities Speak

African Americans (AA) Communities Speak: Partnering With AA in the North and South to Train Palliative Care Clinicians to Address Interpersonal and Systemic Racism and Provide Culturally Aligned Care.

Sponsor

University of Alabama at Birmingham

Enrollment

60 participants

Start Date

Feb 27, 2025

Study Type

INTERVENTIONAL

Conditions

Health Knowledge, Attitudes, Practice Healthy Aging Social Responsibility Care Eliciting Behavior Racism, Systemic

Summary

African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings. Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.

Eligibility

Inclusion Criteria31

Person with serious Illness:
Self-identified as African American (i.e., born, raised, and lived primarily in the US)
Non-Hispanic or Latino
Age ≥60 years
English-speaking
Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
Callahan Six-Item Screener score ≥4
Able to complete baseline surveys.
Bereaved family member:
Self-identified as African American (i.e., born, raised, and lived primarily in the US)
Non-Hispanic or Latino
Age ≥60 years
English-speaking
Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
Callahan Six-Item Screener score ≥4
Able to complete baseline surveys.
Bereaved Family member:
Self-identified as African American (i.e., born, raised, and lived primarily in the US)
Non-Hispanic or Latino
Age ≥60 years
English-speaking
Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
Callahan Six-Item Screener score ≥4
Able to complete baseline surveys
Pastors:
Self-identifying as African American
White, Non-Hispanic or Latino
Sged ≥18 years old.
Clinician eligibility:
Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys
At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys

Exclusion Criteria18

Person with serious illness:
Cannot be receiving hospice care
Bereaved Family Member:
Cannot be a paid "sitter"
Lack of at least 3 months of clinical practice at the study site prior to the intervention training.
Patient eligibility:
Self-identified as African American (i.e., born, raised, and lived primarily in the US)
Non-Hispanic or Latino, 3. age ≥60 years
English-speaking
Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
Callahan Six-Item Screener score ≥4
Able to complete baseline surveys.
Currently receiving hospice care.
Family member eligibility:
Age ≥ 18 years
English-speaking
Community-dwelling
Unpaid care provider of a person with a serious illness.

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Interventions

BEHAVIORALAA Communities Speak to Healthcare Professionals

The training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and implicit bias recognition and management training to mitigate bias in goals of care communication.