RecruitingNCT05910307

Synovial Sarcoma Registry / Biospecimen Repository

Synovial Sarcoma Registry and Biospecimen Repository


Sponsor

Children's Hospital of Philadelphia

Enrollment

1,000 participants

Start Date

Jun 12, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.


Eligibility

Plain Language Summary

Simplified for easier understanding

This is a patient registry and tissue bank for people diagnosed with synovial sarcoma, a rare type of soft tissue cancer. The goal is to collect medical information and biological samples to better understand this cancer and improve future treatments. **You may be eligible if...** - You have been diagnosed with synovial sarcoma (any age, male or female) - You or your parent/guardian can provide written consent **You may NOT be eligible if...** - You have a sarcoma that does not qualify as synovial sarcoma per registry criteria - You are unwilling to participate or provide consent Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

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NCT05910307


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