RecruitingNCT05978141

A Registry for People With T-cell Lymphoma

The T-cell Lymphoma Master Repository (TCLMR): A Prospective Databank of Patients With T-cell Lymphoma With Clinical Annotation and Matched Tumor Specimens


Sponsor

Memorial Sloan Kettering Cancer Center

Enrollment

1,000 participants

Start Date

Jul 27, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this registry study is to create a database-a collection of information-for better understanding T-cell lymphoma. Researchers will use the information from this database to learn more about how to improve outcomes for people with T-cell lymphoma.


Eligibility

Inclusion Criteria32

  • Written informed consent
  • Adequate fresh or archival tumor biopsy or intent to obtain fresh tumor biopsy.
  • Pathologically-confirmed mature T- or natural killer (NK)-cell lymphoma meeting one of the following diagnostic criterion (based on WHO classification and NCCN guidelines):
  • T-cell prolymphocytic leukemia
  • T-cell large granular lymphocytic leukemia
  • Chronic lymphoproliferative disorder of NK cells
  • Aggressive NK-cell leukemia
  • Systemic Epstein-Barr virus (EBV)-positive T-cell lymphoma of childhood
  • Chronic active EBV infection of T- and NK-cell type, systemic form
  • Hydroa vacciniforme-like lymphoproliferative disorder
  • Adult T-cell leukemia/lymphoma
  • Extranodal NK/T-cell lymphoma, nasal type
  • Enteropathy-associated T-cell lymphoma
  • Monomorphic epitheliotropic intestinal T-cell lymphoma
  • Intestinal T-cell lymphoma, not otherwise specified (NOS)
  • Indolent T-cell lymphoproliferative disorder of the gastrointestinal tract
  • Hepatosplenic T-cell lymphoma
  • Subcutaneous panniculitis-like T-cell lymphoma
  • Mycosis fungoides (limited to those with ≥ stage IB disease and those receiving active therapy)
  • Sézary syndrome
  • Primary cutaneous anaplastic large cell lymphoma (receiving systemic therapy)
  • Primary cutaneous Gamma-Delta T-cell lymphoma
  • Primary cutaneous CD8+ aggressive epidermotropic cytotoxic T-cell lymphoma
  • Primary cutaneous acral CD8+ T-cell lymphoma (receiving systemic therapy)
  • Peripheral T-cell lymphoma, not otherwise specified
  • Angioimmunoblastic T-cell lymphoma
  • Follicular T-cell lymphoma
  • Nodal peripheral T-cell lymphoma with TFH phenotype
  • Anaplastic large cell lymphoma, ALK-positive
  • Anaplastic large cell lymphoma, ALK-negative
  • Breast-implant associated anaplastic large cell lymphoma.
  • NOTE: Patients with diagnoses of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma must be receiving systemic therapy.

Exclusion Criteria2

  • Patients with of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma not receiving systemic therapy.
  • Inability to collect prospective data, measure response, or perform adequate follow-up assessments in the clinical judgment of the treating physician. NOTE: Repository participation does not exclude participation in clinical trials, nor does existing clinical trial participation exclude enrollment in the study herein outlined.

Interventions

OTHEROptional Blood Sample and Nail Sample

Participants may provide optional research blood and nail samples for biobanking and future use


Locations(26)

City of Hope Cancer Center (Data collection only)

Duarte, California, United States

UNIVERSITY OF CALIFORNIA SAN DIEGO (Data collection only)

San Diego, California, United States

University of California San Francisco (Data collection only)

San Francisco, California, United States

Stanford University Medical Center (Data collection only)

Stanford, California, United States

University of Colorado (Data Collection Only)

Aurora, Colorado, United States

Yale University (Data Collection Only)

New Haven, Connecticut, United States

University of Miami (Data Collection Only)

Miami, Florida, United States

Moffitt Cancer Center (Data Collection Only)

Tampa, Florida, United States

Emory University (Data Collection Only)

Atlanta, Georgia, United States

Northwestern Medicine (Data Collection)

Chicago, Illinois, United States

Massachusetts General Hospital (Data Collection Only)

Boston, Massachusetts, United States

Dana Farber Cancer Institute (Data Collection Only)

Boston, Massachusetts, United States

Mayo Clinic (Data Collection Only)

Rochester, Minnesota, United States

Washington University (Data Collection Only)

St Louis, Missouri, United States

University of Nebraska (Data collection only)

Omaha, Nebraska, United States

Memorial Sloan Kettering at Basking Ridge (All protocol activities)

Basking Ridge, New Jersey, United States

Memorial Sloan Kettering Monmouth (All protocol activities)

Middletown, New Jersey, United States

Memorial Sloan Kettering Cancer Center @ Suffolk-Commack (All protocol activities)

Commack, New York, United States

Memorial Sloan Kettering Westchester (All protocol activities)

Harrison, New York, United States

Weill Cornell Medical Center (Data Collection Only)

New York, New York, United States

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, New York, United States

Memorial Sloan Kettering Nassau (All protocol activities)

Uniondale, New York, United States

Ohio State University (Data Collection Only)

Columbus, Ohio, United States

University of Pennsylvania (Data Collection Only)

Philadelphia, Pennsylvania, United States

Thomas Jefferson University Hospital (Data collection only)

Philadelphia, Pennsylvania, United States

MD Anderson Cancer Center (Data Collection Only)

Houston, Texas, United States

View Full Details on ClinicalTrials.gov

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NCT05978141


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