RecruitingNCT06064461

Vitaccess Real MG Registry

Vitaccess Real MG Registry: A Prospective International Observational Patient Registry in Myasthenia Gravis Linking Clinical and Patient-reported Data.


Sponsor

Vitaccess Ltd

Enrollment

600 participants

Start Date

Jul 31, 2024

Study Type

OBSERVATIONAL

Conditions

Summary

Vitaccess Real MG (VRMG) is a patient registry designed to capture longitudinal observational data on myasthenia gravis (MG), its treatment, and impact on symptoms, daily activities, and quality of life (QoL). The duration of the registry is 10 years from launch, and approximately 600 patients will be recruited in the US and Europe with no defined upper limit. The registry will link relevant patient- and healthcare professional (HCP)-reported data with clinical data from medical records. Patients will be recruited at clinical sites in all participating countries. In the US only, patients can additionally be recruited via community neurologists or direct-to-patient recruitment.


Eligibility

Min Age: 18 Years

Inclusion Criteria4

  • Adult (age ≥18 years) with a clinically-confirmed diagnosis of myasthenia gravis (MG).
  • Resident in one of the scope countries.
  • Access to a smartphone/tablet/computer/laptop
  • Willing and able to provide informed consent in their local language to take part in the study.

Exclusion Criteria1

  • Participation in a clinical trial at the time of study enrolment.

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Locations(8)

UCI Health

Orange, California, United States

HSHS St. Elizabeth's Hospital

O'Fallon, Illinois, United States

UK HealthCare - University of Kentucky

Lexington, Kentucky, United States

Neurology Associates of South Jersey

Lumberton, New Jersey, United States

Medical University South Carolina

Charleston, South Carolina, United States

University of Texas Health Science Center at Houston

Houston, Texas, United States

Vitaccess Ltd

London, London, United Kingdom

University Hospitals Birmingham

Birmingham, United Kingdom

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NCT06064461


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