Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
Foundation for Sarcoidosis Research
6,833 participants
Jul 1, 2013
OBSERVATIONAL
Conditions
Summary
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
Eligibility
Inclusion Criteria3
- English speaking
- Consent
- Sarcoidosi diagnosis -
Exclusion Criteria1
- NONE
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Interventions
Participants have been diagnosed with sarcoidosis.
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT06234384