A Multi-center Investigation of Family Health.
A Multi-center Investigation of Family Health, Needs, Perceived Support, Self-efficacy and Quality of Life During the Cancer Trajectory: A Longitudinal Mixed Methods Study Among Danish Cancer Patients and Their Caregivers
Odense University Hospital
240 participants
May 13, 2024
OBSERVATIONAL
Conditions
Summary
The current healthcare system is unable to identify burdened and vulnerable families affected by cancer, partly due to a lack of knowledge of how cancer affects family health during treatment and survivorship. Recent reviews have documented a general lack of cancer studies including both the patient and the family, and a particular deficiency in studies including more than the spouse. The principal aim of this study is to investigate family health, needs and perceived support, quality of life, self-efficacy, depression, stress and resilience in both patients with cancer and their families across the cancer trajectory. Additionally, the study seeks to identify particularly burdened and vulnerable families and investigate contributing factors to their vulnerability.
Eligibility
Inclusion Criteria2
- curative intended patients and their eventual appointed caregivers \>18
- breast-, prostate- colorectal cancer or lymphoma.
Exclusion Criteria2
- Not able to understand or give written informed consent
- Not able to speak Danish or complete questionnaires in Danish
Interventions
Questionnaires and interviews
Locations(1)
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NCT06433349