RecruitingNot ApplicableNCT06555939

Promoting Resilience Among Adolescents and Young Adults With Sickle Cell Disease

Sponsor

Boston Children's Hospital

Enrollment

25 participants

Start Date

Oct 23, 2025

Study Type

INTERVENTIONAL

Conditions

Sickle Cell Disease

Summary

Adolescents and young adults with sickle cell disease (SCD) face challenges managing their illness and maintaining their well-being. This study proposes to test the feasibility and acceptability of a resilience-promoting intervention through a Collaborative Care Model. The primary goal is to determine with the resilience intervention (PRISM) is feasible and acceptable for adolescents and young adults with SCD. Exploratory outcomes include whether this intervention improves depression, anxiety, and pain interference.

Eligibility

Min Age: 8 YearsMax Age: 25 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a behavioral approach called Collaborative Care Model and a behavioral approach called Promoting Resilience in Stress Management for people with sickle cell disease. The study is currently recruiting participants at 1 location. People eligible for this study include aged 8 Years to 25 Years.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALCollaborative Care Model

The interprofessional team will meet weekly to review survey scores, endorsed psychological and physical health needs, as well as other concerns. They will conduct assessments as a group that may include referrals for additional support.

BEHAVIORALPromoting Resilience in Stress Management

PRISM targets 4 resilience resources: stress management, goal-setting, cognitive reframing and meaning-making. It is delivered one-on-one by trained coaches in English or Spanish via HIPAA compliant video-conference or in-person. Sessions are delivered every 1-2 weeks based on patient preference. To facilitate practice between sessions, all participants 13 or older have access to the digital PRISM app.