Improving Congenital Heart Disease Care
Improving Care for Adults With Congenital Heart Disease
University of California, San Francisco
1,000 participants
Sep 5, 2024
INTERVENTIONAL
Conditions
Summary
The theory-informed digital health intervention, called as "Empower My Congenital Health (EmpowerMyCH)" aims to activate and engage ACHD patients in building confidence toward navigating the adult healthcare system. This tool is built after incorporating the theories of behavior change, gathering inputs from target patients in all stages of its design and implementation. The key features of the tool include a digital medical passport, updated congenital information, community support, and patient stories and advice. The investigators aim to test the acceptability, feasibility, efficacy, and effectiveness of the intervention.
Eligibility
Inclusion Criteria3
- have congenital heart disease
- years or older
- can sign the informed consent
Exclusion Criteria2
- developmentally delayed
- unable to consent
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Interventions
The intervention has features such as a digital medical passport, updated health-related information, community support and patient/peer stories and advice
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT06581484