Caregivers Preparing for Their Own Health Care Emergency
Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency
University of California, Davis
68 participants
Jul 18, 2025
INTERVENTIONAL
Conditions
Summary
The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.
Eligibility
Inclusion Criteria4
- Must be 55 years of age or older at the time of signing the informed consent
- Must self-identify as the spouse or partner of the PWD (may be subject to independent verification per PI discretion, e.g., medical record review or a signed doctor's note)
- Must provide some caregiving to a PWD
- Must live in the same dwelling as the PWD
Exclusion Criteria7
- Diagnosis of dementia
- Unable to use or does not have access to a computer
- Complete deafness or blindness and/or unable to use a telephone
- Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
- Unable to follow directions
- Unable to read or write in English
- Participation in prior study involving the EPT
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Interventions
The coach will use motivational interviewing techniques to: 1. To assist and guide the caregiver to establish a standby caregiver relationship 2. To assist and guide the caregiver as to how to use the EPT
Locations(1)
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NCT06635876