RecruitingNCT06651580

Biospecimen Collection to Identify Gene Mutations for High Risk Pancreatic Cancer in Pediatric Patients, INSPPIRE 2 Study

Pediatric Longitudinal Cohort Study of Chronic Pancreatitis (INSPPIRE 2)


Sponsor

M.D. Anderson Cancer Center

Enrollment

1,600 participants

Start Date

Apr 1, 2021

Study Type

OBSERVATIONAL

Conditions

Summary

This clinical trial collects blood, saliva, urine, or stool samples to help identify possible genetic mutations that may increase a person's chance at developing pancreatic cancer. Finding genetic markers among pediatric patients with acute recurrent pancreatitis and chronic pancreatitis may help identify patients who are at risk of pancreatic cancer.


Eligibility

Max Age: 17 Years

Inclusion Criteria16

  • All subjects/parents must sign an informed consent and/or assent indicating that they are aware of the investigational nature of this study
  • Subjects/parents must have signed an authorization for the release of their or their child's protected health information
  • All children must be under 18 years of age at the time of enrollment
  • Acute pancreatitis (AP): AP is defined as requiring 2 of the following:
  • Abdominal pain compatible with AP
  • Serum amylase and/or lipase values \>= 3 times upper limits of normal
  • Imaging findings of AP, such as gland enlargement, acute inflammatory changes, and fluid collections
  • ARP is defined as: At least 2 episodes of acute pancreatitis with complete resolution of pain and a \>= 1 month pain-free interval between episodes
  • Chronic Pancreatitis:
  • Children with at least:
  • One irreversible structural change in the pancreas with or without abdominal pain +/- exocrine pancreatic insufficiency +/- diabetes
  • Irreversible structural changes:
  • Ductal calculi, dilated side branches, parenchymal calcifications found in any imaging (abdominal ultrasound \[abd US\], magnetic resonance imaging/magnetic resonance cholangiopancreatography \[MRI/MRCP\], computerized tomography \[CT\], endoscopic retrograde cholangiopancreatography \[ERCP\], endoscopic US \[EUS\])
  • Ductal obstruction or stricture/dilatation/irregularities that are persistent (for \>= 2 months) on any imaging
  • Parenchymal atrophy, irregular contour, accentuated lobular architecture, cavities alone are not diagnostic findings for CP
  • Surgical or pancreatic biopsy specimen demonstrating histopathologic features compatible with CP (acinar atrophy, fibrosis, protein plugs, infiltration with lymphocytes, plasma cells, macrophages)

Exclusion Criteria1

  • Subjects must not have any significant medical illnesses that in the investigator's opinion cannot be adequately controlled with appropriate therapy or would compromise the subject's ability to tolerate study interventions

Interventions

PROCEDUREBiospecimen Collection

Undergo collection of blood, saliva, urine or stool samples

OTHERQuality-of-Life Assessment

Complete QoL assessment

OTHERQuestionnaire Administration

Complete questionnaire


Locations(26)

Children's Hospital Los Angeles

Los Angeles, California, United States

Cedars Sinai Medical Center

Los Angeles, California, United States

UCSF Benioff Children's Hospital Oakland

Oakland, California, United States

Stanford Cancer Institute Palo Alto

Palo Alto, California, United States

University of Colorado

Denver, Colorado, United States

Emory University Hospital/Winship Cancer Institute

Atlanta, Georgia, United States

Riley Hospital for Children

Indianapolis, Indiana, United States

University of Iowa/Holden Comprehensive Cancer Center

Iowa City, Iowa, United States

Ochsner Medical Center Jefferson

New Orleans, Louisiana, United States

Johns Hopkins University/Sidney Kimmel Cancer Center

Baltimore, Maryland, United States

Boston Children's Hospital

Boston, Massachusetts, United States

University of Minnesota/Masonic Children's Hospital

Minneapolis, Minnesota, United States

Washington University School of Medicine

St Louis, Missouri, United States

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Nationwide Children's Hospital

Columbus, Ohio, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Children's Hospital of Pittsburgh of UPMC

Pittsburgh, Pennsylvania, United States

University of Texas Southwestern/Children's Medical Center

Dallas, Texas, United States

M D Anderson Cancer Center

Houston, Texas, United States

Texas Children's Hospital

Houston, Texas, United States

Children's Hospital of San Antonio

San Antonio, Texas, United States

Children's Hospital of Wisconsin

Milwaukee, Wisconsin, United States

Sydney Children's Hospital

Randwick, New South Wales, Australia

Hospital for Sick Children

Toronto, Ontario, Canada

The Montreal Children's Hospital of the MUHC

Montreal, Quebec, Canada

Hadassah University Hospital

Jerusalem, Israel

View Full Details on ClinicalTrials.gov

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