RecruitingNCT07165938

Genetics of Neonatal Encephalopathy and Related Disorders


Sponsor

Boston Children's Hospital

Enrollment

300 participants

Start Date

Feb 4, 2026

Study Type

OBSERVATIONAL

Conditions

Summary

Investigators at Boston Children's Hospital are conducting research in order to better understand the genetic factors which may contribute to neonatal encephalopathy (NE) and related disorders. These findings may help explain the broad spectrum of clinical features and outcomes seen in individuals with a history of NE.


Eligibility

Inclusion Criteria5

  • Proband Criteria:
  • Diagnosed with neonatal encephalopathy during the neonatal period as documented in the electronic medical record
  • Less than 6 years old at the time of study enrollment
  • Patient at Boston Children's Hospital
  • \- Biological parent of eligible proband (see above)

Exclusion Criteria3

  • Genetic cause of NE already identified
  • Deceased prior to enrollment
  • Parent criteria:

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Locations(1)

Boston Children's Hospital

Boston, Massachusetts, United States

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NCT07165938


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