RecruitingACTRN12620001124921

A Facebook delivered physical activity focused group lifestyle intervention for the families of children with genetic epilepsy

Feasibility of a Facebook delivered physical activity focused group lifestyle intervention for the families of children with genetic epilepsy


Sponsor

UNSW

Enrollment

20 participants

Start Date

Aug 10, 2020

Study Type

Interventional

Conditions

Summary

This study will recruit sedentary parents/primary carers of children with epilepsy and their chosen support partner to a 4 week, group based physical activity promotion intervention delivered online through a private Facebook group. The group will allow members to receive information and contribute to weekly conversations on pre-specified topics related to physical activity, e.g goal setting, reducing sedentary behaviour and overcoming barriers. The purpose of the Facebook group is to facilitate social support and provide participants with a platform to exchange personal experiences including barriers and facilitators to commencing and maintaining a PA program. All participants will also be provided with a Fitbit and encouraged to set goals and track their PA levels as a way to support self-monitoring.


Eligibility

Sex: Both males and femalesMin Age: 18 YearssMax Age: 65 Yearss

Plain Language Summary

Simplified for easier understanding

This study offers an online group physical activity program for parents and carers of children with genetic epilepsy. Caring for a child with epilepsy can be isolating and exhausting, and many carers find it difficult to maintain their own physical health and mental wellbeing. This four-week program uses a private Facebook group to provide weekly information, peer support, and goal-setting strategies around physical activity. All participants also receive a Fitbit fitness tracker to help monitor and motivate their daily movement. Each participant nominates a support partner — a partner, friend, or family member — who joins the program too, providing an extra layer of social accountability and encouragement. The program focuses on helping carers get started with being more active and overcoming common barriers. You may be eligible if you are a parent or primary carer of a child with genetic epilepsy, aged 18 to 65, currently getting less than 150 minutes of moderate-to-vigorous physical activity per week, medically cleared for exercise, speak English, have internet access, and have or are willing to create a Facebook account. You must also nominate a support partner who meets similar criteria.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

The physical activity intervention will be 4-weeks in duration and be delivered online through a private Facebook group. The group will be titled ‘Movement for the parents and families of children wit

The physical activity intervention will be 4-weeks in duration and be delivered online through a private Facebook group. The group will be titled ‘Movement for the parents and families of children with genetic epilepsy.’ The research team will provide education on pre-determined weekly topics and facilitate discussion boards e.g. goal setting, barriers and sedentary behaviour. The topics will include: 1. Introductions/barriers to activity, 2. Goal setting and ways to address barriers, 3. Resistance/aerobic guidelines and resources, 4. Review of progress, plan going forward. These posts will all occur from the study generated account. Participants will be provided with a Fitbit prior to the intervention and asked to wear it daily. This is an activity tracker worn on the wrist that measures data such as steps and active minutes and syncs to a personal Fitbit dashboard where participants can set personal goals and track progress. The research team will be using Fitbit’s health solutions platform where they will be able to log in and access data from the participants activity trackers. The Fitbit will be encouraged to be worn during waking hours, but can also be worn overnight if participants choose.The health solutions platform is typically used for workplaces however we have will use a private group for our study. After the 4-week trial participants will have the choice to remain in the Facebook group and continue to use it as a form of social support for exercise without the input from facilitators. There is no minimum requirement of access to the Facebook group, however participants will be encouraged to check it regularly. Adherence will be measured by views per post on the Facebook group.


Locations(1)

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

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ACTRN12620001124921


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