RecruitingNCT00307281

Emphysema Research Registry and Biosample Repository

Emphysema Research Registry; Screening Study and Genetic Testing


Sponsor

University of Pittsburgh

Enrollment

3,000 participants

Start Date

Aug 1, 2000

Study Type

OBSERVATIONAL

Conditions

Summary

The Comprehensive Lung Center (CLC) at the University of Pittsburgh Medical Center (UPMC Health System) provides patients with any type of breathing or lung disorder a full range of diagnostic and therapeutic services. The Emphysema/COPD Research Center (ECRC) is a specialty clinic, within this center, that attempts to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema. The Emphysema Research Registry will enable pulmonary research physicians to: 1) gather information and create a research registry of people who have been diagnosed with emphysema; 2) utilize this research registry with the purpose of conducting research that attempts to advance the understanding of emphysema and to evaluate new therapies; and, 3) use the research registry to identify potential candidates for future research programs. These aims will be achieved by the collection of DNA (genetic material)for analysis and storage in addition to pulmonary function tests and other medical information.


Eligibility

Min Age: 21 Years

Plain Language Summary

Simplified for easier understanding

This registry collects medical information and biological samples from people with emphysema (a lung disease that makes breathing difficult) in order to better understand the disease and find better treatments. **You may be eligible if...** - You have been diagnosed with emphysema or chronic obstructive pulmonary disease (COPD) - You are willing to donate blood, tissue, or other samples for research - You are willing to complete questionnaires and attend follow-up visits **You may NOT be eligible if...** - You have a different primary lung condition that is not emphysema - You are not able to provide informed consent - You are not able to attend the required study visits Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

University of Pittsburgh Emphysema/COPD Research Center

Pittsburgh, Pennsylvania, United States

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NCT00307281


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