RecruitingNCT00588562

Rare Kidney Stone Consortium Patient Registry

Rare Kidney Stone Consortium Registry for Hereditary Kidney Stone Diseases


Sponsor

Mayo Clinic

Enrollment

730 participants

Start Date

Jul 1, 2003

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria (PH), Dent disease, Cystinuria and APRT deficiency. This information will create a registry that will help us to compare similarities and differences in patients and their symptoms. The more patients we are able to enter into the registry, the more we will be able to understand the Primary Hyperoxalurias,Dent disease, cystinuria and APRT and learn better ways of caring for patients with these diseases.


Eligibility

Min Age: 0 YearsMax Age: 100 Years

Inclusion Criteria2

  • Individuals must have a definitive diagnosis of Primary Hyperoxaluria, Dent Disease, Cystinuria or APRT Deficiency.
  • Individuals have a family history of a sibling with Primary Hyperoxaluria,Dent Disease, Cystinuria or APRT Deficiency.

Exclusion Criteria1

  • Individuals who do not have Primary Hyperoxaluria, Dent Disease, Cystinuria or APRT Deficiency.

Interested in this trial?

Get notified about updates and connect with the research team.


Locations(4)

Dent Disease Registry -Mayo Clinic

Rochester, Minnesota, United States

Primary Hyperoxaluria Registry - Mayo Clinic

Rochester, Minnesota, United States

Cystinuria Registry - New York University

New York, New York, United States

APRT Registry - Landspitali Universtiy Hospital

Reykjavik, Iceland

View Full Details on ClinicalTrials.gov

For the most up-to-date information, visit the official listing.

Visit

NCT00588562


Related Trials