RecruitingNCT02780297

Prospective Research Rare Kidney Stones (ProRKS)


Sponsor

Mayo Clinic

Enrollment

220 participants

Start Date

May 1, 2016

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to determine the natural history of the hereditary forms of nephrolithiasis and chronic kidney disease (CKD), primary hyperoxaluria (PH), cystinuria, Dent disease and adenine phosphoribosyltransferase deficiency (APRTd) and acquired enteric hyperoxaluria (EH). The investigator will measure blood and urinary markers of inflammation and determine relationship to the disease course. Cross-comparisons among the disorders will allow us to better evaluate mechanisms of renal dysfunction in these disorders.


Eligibility

Inclusion Criteria7

  • Diagnosis of primary hyperoxaluria
  • Diagnosis of enteric hyperoxaluria
  • Diagnosis of Dent Disease
  • Diagnosis of Cystinuria
  • Diagnosis of adenine phosphoribosyltransferase deficiency (APRTd)
  • Diagnosis of Lowe Syndrome
  • Diagnosis of Dent Disease Carrier

Exclusion Criteria2

  • Prior renal failure
  • History of liver and/or kidney transplant.

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Locations(11)

University of Alabama @ Birmingham

Birmingham, Alabama, United States

Mayo Clinic Jacksonville

Jacksonville, Florida, United States

Children's Memorial Hospital

Chicago, Illinois, United States

Children's Hospital, Harvard Medical School

Boston, Massachusetts, United States

Mayo Clinic Hyperoxaluria Center

Rochester, Minnesota, United States

New York University

New York, New York, United States

Cincinnati Children's Hosptial Medical Center

Cincinnati, Ohio, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Hosptial of Sick Children

Toronto, Ontario, Canada

Landspitali Universtiy Hospital

Reykjavik, Iceland

Shaare Zedek Medica Center

Jerusalem, Israel

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NCT02780297


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