RecruitingNot ApplicableNCT01659749

Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria

Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD).

Sponsor

Emory University

Enrollment

200 participants

Start Date

Jun 1, 1995

Study Type

INTERVENTIONAL

Conditions

Pregnancy Phenylketonuria

Summary

The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.

Eligibility

Sex: FEMALEMin Age: 11 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a behavioral approach called Metabolic camp for people with phenylketonuria and pregnancy. The study is currently recruiting participants at 1 location. People eligible for this study include women aged 11 Years and older.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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