RecruitingNCT03032835

Partners Calciphylaxis Biobank

Partners Calciphylaxis Biobank and Patient Registry


Sponsor

Massachusetts General Hospital

Enrollment

300 participants

Start Date

Jan 1, 2017

Study Type

OBSERVATIONAL

Conditions

Summary

Calciphylaxis, a vascular calcification disorder, is a rare and serious disorder characterized by calcification of dermal arterioles. There are significant gaps in the understanding of the pathophysiology and risk factors for calciphylaxis. At present, there is no effective treatment. Uncertain pathobiology, rare incidence and lack of collaborative approach have been some of the major limiting factors towards treating calciphylaxis. The Partners Calciphylaxis Biorepository (PCB) aims to address these gaps within calciphylaxis research by utilizing existing and, when necessary, developing new infrastructure to support the consent of patients and the collection of dedicated samples for a calciphylaxis repository.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study builds a collection (biobank) of blood and tissue samples from people with calciphylaxis — a rare and serious condition where calcium deposits form in small blood vessels beneath the skin, causing painful, non-healing wounds — to help researchers better understand this poorly understood disease and develop new treatments. **You may be eligible if...** - You are 18 or older - A treating physician has assessed your skin lesions and determined they are consistent with a calciphylaxis diagnosis - You are able to provide informed consent, or a legal representative can consent on your behalf if you have difficulty making decisions **You may NOT be eligible if...** - You are under 18 years old - You are currently incarcerated (a prisoner) Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Massachusetts General Hospital

Boston, Massachusetts, United States

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NCT03032835


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