RecruitingNot ApplicableNCT04494945

Identifying and Caring for Individuals With Inherited Cancer Syndrome

Approaches to Identify and Care for Individuals With Inherited Cancer Syndromes

Sponsor

OHSU Knight Cancer Institute

Enrollment

27,500 participants

Start Date

Mar 9, 2020

Study Type

INTERVENTIONAL

Conditions

Malignant Solid Neoplasm Breast Ductal Carcinoma in Situ Hematopoietic and Lymphoid System Neoplasm Lynch Syndrome BRCA1/2-Associated Hereditary Breast and Ovarian Cancer Syndrome Hereditary Neoplastic Syndrome

Summary

This trial examines approaches to identify and care for individuals with inherited cancer syndrome. The purpose of this study is to offer no cost genetic testing to the general public. Researchers hope to learn the value of providing broad, public-wide testing for high risk cancer types (like hereditary breast and ovarian cancer or Lynch syndromes) instead of only testing people whose families are known to be high risk.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This trial is studying ways to identify and support people who carry inherited gene changes (like BRCA1, BRCA2, or Lynch syndrome) that raise the risk of cancer, and to improve how this information is shared with family members. You may be eligible if: you are 18 or older; you have received genetic counseling; or you have been diagnosed with a qualifying cancer; and in some groups, you are willing to submit a DNA sample and join a secure research app. Requirements vary by cohort — some groups include people with or without cancer, while others focus on those with confirmed hereditary mutations. You may NOT be eligible depending on which sub-group (cohort) you fall into — for example, if you have not had a relevant genetic test or do not have a qualifying cancer diagnosis. Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

Interested in this trial?

Get notified about updates and connect with the research team.