RecruitingNCT04611516

The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)


Sponsor

University of Bern

Enrollment

1,000 participants

Start Date

Mar 2, 2020

Study Type

OBSERVATIONAL

Conditions

Summary

The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.


Eligibility

Inclusion Criteria2

  • Diagnosis of PCD (clinical and test certified)
  • Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up

Exclusion Criteria1

  • None

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Locations(1)

University of Bern

Bern, Switzerland

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NCT04611516


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