RecruitingPhase 3NCT05035030

Long-term Safety and Efficacy of Odevixibat in Patients With Alagille Syndrome

An Open Label Study to Evaluate the Long-term Safety and Efficacy of Odevixibat (A4250) in Patients With Alagille Syndrome (ASSERT-EXT)


Sponsor

Albireo, an Ipsen Company

Enrollment

70 participants

Start Date

Sep 3, 2021

Study Type

INTERVENTIONAL

Conditions

Summary

The purpose of this study is to assess the long-term safety and effectiveness of odevixibat in participants with Alagille syndrome (ALGS). The participants of this study will have ALGS a rare genetic disorder that can affect multiple organ systems of the body including the liver, heart, skeleton, eyes and kidneys. Common symptoms, which often develop during the first three months of life, include blockage of the flow of bile from the liver (cholestasis), yellowing of the skin and mucous membranes (jaundice), poor weight gain and growth and severe itching (pruritis). The drug used for the study is odevixibat and was authorized for the treatment of cholestatic pruritus in infants with ALGS over 12 months of age by the United States Food and Drug Administration on 13 June 2023.


Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a drug called Odevixibat for people with alagille syndrome. The study is currently recruiting participants at 39 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

DRUGOdevixibat

Odevixibat is a small molecule and selective inhibitor of IBAT.


Locations(39)

Rady Children's Hospital

San Diego, California, United States

UCSF

San Francisco, California, United States

Children's Healthcare of Atlanta

Atlanta, Georgia, United States

Riley Hospital for Children at IU Health

Indianapolis, Indiana, United States

Johns Hopkins Hospital

Baltimore, Maryland, United States

Boston Children's Hospital

Boston, Massachusetts, United States

Children's Mercy Hospital and Clinics

Kansas City, Missouri, United States

Northwell Health System

New Hyde Park, New York, United States

Hassenfeld Children's Hospital at NYU Langone

New York, New York, United States

New York-Presbyterian / Columbia University Irving Medical Center

New York, New York, United States

The Childrens Hospital at Montefiore Albert Einstein School of Medicine

The Bronx, New York, United States

Atrium Health Carolinas Medical

Durham, North Carolina, United States

Cincinnati Children's Hospital

Cincinnati, Ohio, United States

Oregon Health Science University School of Medicine

Portland, Oregon, United States

Monroe Carell Jr. Childrens Hospital at Vanderbilt

Nashville, Tennessee, United States

Childrens Medical Center of Dallas University of Texas Southwestern

Dallas, Texas, United States

Texas Children's Hospital

Houston, Texas, United States

Texas Liver Institute

San Antonio, Texas, United States

Children's Hospital Queensland

South Brisbane, Queensland, Australia

The Royal Children's Hospital Melbourne

Parkville, Victoria, Australia

Cliniques Universitaires Saint-Luc Bruxelles

Brussels, Belgium

Hôpital Femme Mère Enfant de Lyon

Bron, France

Antenne pediatrique du CIC-Hopital Jeanne De Flandre

Lille, France

Hopital Necker Enfants Malades

Paris, France

Charité - Universitätsmedizin Berlin

Berlin, Germany

Medizinische Hochschul

Hanover, Germany

Universitatsklinik fur Kinder-und Jugendmedizin Tubingen

Tübingen, Germany

Shaare Zedek Schneider Children Medical

Petah Tikva, Israel

AOU Meyer

Florence, Italy

Azienda Ospedale University

Padova, Italy

Ospedale Pediatrico Bambino Gesu

Rome, Italy

University of Malaya Medical Center

Kuala Lumpur, Malaysia

Universitair Medisch Centrum Groningen

Groningen, Netherlands

Wilhelmina Children's Hospital UMCU Utrecht

Utrecht, Netherlands

Instytut Pomnik-Centrum Zdrowia Dzieck

Warsaw, Poland

National Taiwan University Hospital

Taipei, Taiwan

Istanbul University Istanbul Medical Faculty Hospital

Istanbul, Turkey (Türkiye)

Birmingham Women's and Children's NHS Foundation Trust

Birmingham, United Kingdom

King's College Hospital NHS Foundation Trust King's College Hospital Paediatric Research

London, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT05035030


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